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Long-term health outcomes of people living with spina bifida

Federal funding opportunity CDC-RFA-DD-26-0222 from Centers for Disease Control - NCBDDD (Department of Health and Human Services).

Apply on Grants.gov →Application closes October 26, 2026

Posted: August 26, 2026
Closes: October 26, 2026
Award ceiling: $300,000
Award floor: $100,000
Program funding: $3,000,000
Expected awards: 19
Cost sharing: No
Instrument: Cooperative Agreement
Assistance listing: 93.073
Category: Health
Archives: November 25, 2026

Program funding history

Awards made under Assistance Listing 93.073 across FY2024–FY2026, from public federal spending records.

FY2024 obligated: $0
FY2025 obligated: $0
FY2026 (to date) obligated: $6.5M
Awards in window: 101

Top recipients: Special Olympics Inc., University of Alabama at Birmingham, The University of Iowa, The Leland Stanford Junior University, University of Texas at Austin

Source: USAspending.gov · refreshed August 2026

Synopsis

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

Who can apply

City or township governments
Independent school districts
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
Small businesses
Special district governments
State governments
County governments
Native American tribal governments (Federally recognized)
Private institutions of higher education
Public and State controlled institutions of higher education
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
For profit organizations other than small businesses

How to apply

Applications go through the official government listing. Grants Radar links you straight to the source — applying is free.

View on Grants.gov

Agency contact: Centers for Disease Control - NCBDDD · [email protected] · 7704882756

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